May 24, 2011

You down with I.E.P ?? Ya you know me!











(((An I.E.P is an Individualized Education Plan set into action by the parents and school district to determine things like goals, classroom placement, and what extra services are given to your child. Services range from personal aids in the classroom to physical and occupational therapy sessions. )))

It's that time of year again. Time to have my annual IEP meeting with the school district. I never look forward to these meetings. In my experience if you go in there and sit and agree to everything they propose then they go quite quickly and smoothly. Fortunately for my son, that only happened once.

During my first IEP meeting I was so uneducated about the process that I did go in there and agree to everything, I thought that they knew best where to put him and I trusted them to help me navigate the system. This ended up in a placement for my son that really was not quite right. I never felt good about the class he was in but I didn't know what I could do about it or even where to start. Having just moved here I didn't know anyone else who was going through the process that I could turn to. With the regional Center you have a case worker that can answer your questions but many times (not always) parents can be on their own when it comes to navigating things like IEP plans and our local school districts. When I went to my first IEP meeting I didn't even know what it was about or how important it was. I just got a notice to show up for a screening. Anyway, my point is that unaided by someone who knows the law or has been through it before it can sometimes feel like you have no control with the school district. That's how I felt until I met a wonderfully supportive lady who works at Rowell Family Empowerment in Redding, CA. I heard of Rowell through a playgroup and checked out their website. They offer many different types of services to families in our area who have children with special needs. I learned that they offer IEP training courses for free so I signed right up. The first thing they handed me at the meeting was a big green book containing all federal and state special education laws with layperson translations in the margins. The class was so amazing that it inspired me to take charge of my son's education and become a much better advocate for him. I highly recommend attending one of their many IEP training classes. The training will empower you greatly in your adventures navigating the school district. I will be forever grateful to the help that Rowell Family Empowerment gave me and my family. Please check out their site and see how they can help you or vice versa :). http://www.rfenc.org/

Flash forward a few years from my first IEP meeting to this year and our current IEP meeting for next school year. This is an important meeting too. I was surprised to hear from the board of 6 members of the school system that they believed he would do better starting out in the Special Education class for 1/2 of the day. My son was doing so well in preschool and I had a hard time understanding right off why they wanted him in the special class for 1/2 of the day. From my trainings with Rowell and other research on the Internet I knew that they could not put him in that class without my consent. If they wanted him in there they were going to have to convince me that he belonged in there. So I began to ask questions. Direct to the point questions. I soon learned that although they were supposed to actually visit my son in the classroom to evaluate him they never did so they were making placement recommendations without ever having met him. When a representative from his current school was consulted she could not really give a concrete answer when I asked her why she believed he needed to be in the special education class. In fact when I pressed further for examples of a situation that would demonstrate his need for closer supervision she could not give one. I came to find out that she recommended his placement based on him not really knowing what to do with himself in the "down times" as she put it.

That was it! That was all I needed to hear. So basically they were recommending to me that he be placed in the special education class based on the fact that he does exceedingly well at his academics, is friendly, outgoing, and social but like most other preschoolers needs direction in the "down times" and sometimes "has trouble sitting still without a prompt". As far as I was concerned after hearing all they had to say, I was more convinced than ever that my boy needed to be in the regular class the majority of the day. I believe that appropriate social models are very important for my son at this stage in his development and I was not going to let them start him off with one hand tied behind his back. It took some restating of my case and wishes many times but eventually they came around to my side of things. They agreed to start him in the regular class the whole day with the exception of 30 minutes a day he will be pulled out for speech, OT, and to work on his IEP goals. The school will meet with me 30 days after school starts to see how everything is going. I am very happy with this outcome. I would not have felt right letting them put him where they were suggesting. I know he needs more of a challenge. I've been to his school and I've seen him working that "aid" for all she's worth and I'm confidant that he will rise to the occasion when we raise the bar a little bit higher for him in August.

The thing with IEP meetings is that you can't loose your cool. You still have to work with these people and maintain good working relationships with them so no matter what never ever lose your temper. You'll be surprised how soon people fold when you just keep repeating what you want for your child and you spit out a few lega-eese terms like "least restrictive environment" and "appropriate social models".. Bone up on some negotiating skills, watch a few episodes of Pawn Stars, and take the class from Rowell Family Empowerment in Redding Ca. Be prepared to hear many times "we just want what is best for your child".....but remember that you are the Mother / Father and you KNOW what's best for your child. A parent that knows that and trusts their gut and can speak up for their child is the best advocate a kid can get. Good luck everyone!



Did you know:


*As a parent you have the right at any time to notify the school district that you want an additional IEP meeting to take place. Even if you had one two months ago but want to take another crack at it or something isn't sitting well with you about the goals.


*As a parent you have the right to bring anyone with you to your IEP meeting as a family advocate? I had someone from Rowell Family Empowerment come with me last year and she was a great support for me. The school board typically has 5-8 staff members present. It gets hard negotiating with just you against that many professionals. Everyone is bound to second guess themselves when they are outnumbered like that. Follow your gut and bring a friend.

May 3, 2011

American Cancer Society Relay For Life




This June I will be walking (or skating) in the Redding chapter of The American Cancer Society's Relay for Life fundraiser to beat cancer. I'll be there with the lovely ladies from my roller derby team Shasta Roller Derby. We will be walking for 24 hours straight, some of us will be up walking all through the night. Cancer never sleeps. We are actively raising money for this great cause and trying to meet a team donation goal of $500. We had a great turn out this past Saturday at a car wash we hosted in Palo Cedro to raise donations for the relay too. My personal goal is to raise $100 in donations to add to my team's goal. Every dollar counts. Please take a moment to consider donating a dollar or two to my totals, doing so would be a great act of kindness and generosity to those suffering from a life with cancer. Here is a link to where you can contribute online toward my personal goal of raising $100 dollars.

http://main.acsevents.org/site/TR/RelayForLife/RFLFY11CA?px=20964925&pg=personal&fr_id=31829

March 31, 2011

Toothpaste, flouride, and lies...oh my!


Recently it came to my attention that Tom's of Maine Toothpaste contains soy. I know this because I called the company and asked them where the Glycerin in their toothpaste comes from. Their answer : Vegetables. I pressed further. "I really need to know what vegetables because my son is allergic to some of them like soy" . Them: "oh there is no soy in our product. Me:"OK but could you get me to someone who could verify which vegetable your glycerin comes from.?" Them: "Hold On". Ten minutes of holding and transfers later and I had my answer. The Glycerin comes from Soy.


Great, that's been my son's toothpaste for the last two years. After learning this I was on the hunt for another toothpaste with a tall order. It had to be fluoride free (Fluoride it is a neurotoxin and should not be ingested....don't believe me? Google it) because my son still eats and swallows the paste. It also had to be Gluten free, Casein free, Soy free, dye free, and artificial sweetener free. Needless to say I was looking for one for a long time. For a while there I had to make my own, not cool.


Luckily I found a commercial toothpaste that fits the bill and then some. It's called Coral White and I get it on Amazon


It's about $7.00 for a 6oz. tube plus shipping. I called the company and their claims hold up. They say it has:


No Fluoride

No Dyes

No synthetic flavors

No synthetic preservatives

No sodium Lauryl Sulfate

No Glycerin

Gluten Free

Casein Free

Soy Free


If you call the company they will send you a few free samples to see if your kids like it. Mine did and teeth brushing just got a whole lot safer and easier thanks to this new tasty toothpaste. They can be reached at 800-882-9577 or www.coralcalcium.com Enjoy!

January 17, 2011

What a difference a year makes

So recently I was going through some old pictures and video on my computer and I came across some old video of Jackson on Christmas morning last year. It's video of him seeing the tree in the morning after Santa visited. Seeing his reaction to all the presents is something I like to record each year.

Anyway I was struck by the video proof of just how far he has come. Last year at Christmas Jackson was about 3.75 years old. He had been on the diet for about 5 months and we had not yet started supplements. It takes a few months to clear out all of the gluten from your body so Jackson was doing well at this point compared to where he started 5 months prior. Before he started the diet he did not speak in sentences, now here he is 5 months later and he is clearly speaking in sentences. BUT, his sentences in this video are all the same basically. You can see how he is very happy to see the presents but his mind gets stuck in a loop and he keeps repeating "can I open the presents please?" over and over. That repetitive speech is called Echolalia and is one of the symptoms of his autism. He makes slight glimpses of eye contact. He was totally unaware that it was Christmas before we came out to show him the tree. He didn't understand about Santa and before we came out to the tree he was getting dressed and getting his hair combed completely unaware of what waited for him in the living room. Here is the video.




Second video shows Jackson at this past Christmas, 12-25-2010. What a difference a year of Biomed makes. In this video he comes to wake us up on Christmas morning, before dawn, like any other kid. He defiantly understood about Santa this year and in fact actually helped make a letter to Santa to ask for what he wanted. This year he was anticipating Santa's visit. He was just as excited as last year about the presents but this year his mind was not stuck in that loop that it was last year. This year he was able to express the thoughts going through his head instead of just repeating the one sentence. He included us so much more and made better eye contact while opening up his new toys. This year he turned his head to make eye contact when his name was called, he was aware of so much more and so much more tuned into the world around him. This year he is doing so well compared to last year that I just had to share, I'm very proud of how far my little 1 pound 10oz. baby has come. Days like this where I get to see all the hard work pay off, are the days that keep me going.


January 13, 2011

Huge kitchen time savers

I have been meaning to post this for a long time. Lately though it's becoming clear to me that you all are in need of some good time saving tips for GFCFSF cooking. So here goes. I use a variety of gadgets in the kitchen that save me lots of time and effort so I thought I would show them to you and tell you how each one helps me save time. Maybe you'll see something you didn't think of before , but if not let me know what you use to save you time in the kitchen and maybe I will learn something from you. Matter fact leave a comment after this post on your best time saving kitchen tip.
The rice cooker. Without a doubt the most used appliance in our kitchen. If you don't have one it will save you tons of frustration and time making rice which becomes a staple after going GFCFSF. If you plan on buying one make sure you get one with a non-stick pot.

The electric knife. Saves me time cutting a whole loaf of bread, cutting french toast sticks, and cutting chicken breasts for chicken nuggets.

The mandolin. Its a simple little slicer that works really well for baking potato and sweet potato slices in the oven. I also have used it for slicing carrots and other foods for dehydrating. They can get expensive so I kept an eye out at garage sales and thrift stores and ended up with this adjustable one I love for .25 cents. There are some newer ones that aren't too expensive, just shop them online for the best deals.



The crepe maker. This is kinda a una-tasker but a pretty helpful one. I use this to make GFCFSF flour tortillas. Just make any GFCFSF batter and dip into included batter pan. Very easy and always a hit with the little guy.

The scoops. Ice cream scoops and portioners are a huge time saver in the kitchen. I use the various sizes to portion out and make many foods like pancakes, sausage balls, muffins, and cookies. The scoops not only save time but as an added bonus they make everything uniform and correctly portioned.

The bread maker. Saves mucho time and money. I love this thing so much. If wasn't already married... The ice cream maker. This one is essential for making kid approved GFCFSF ice cream. The cylinder stays in the freezer so we can make ice cream any time the cravings strike. It's so easy I don't even use a recipe every time. I just grab a blender, add almond or coconut milk or some blend of the two, add fruit and some times even veggies, then sweeten with honey or raw sugar or real syrup and blend away. That mixture gets added to the ice cream maker and in 20 minutes you got ice cream.
The popcorn maker. Such a great yummy way to replace microwave popcorn. Jackson loves helping to make it and waiting for it to pop. I use coconut oil and sometimes add garlic or other spices, the result is wonderful.



The mini steamer. Another handy gadget from the Japanese dollar store. Perfect size to steam one serving of veggies or one serving of rice, all in the microwave in just 2 -5 minutes!

In addition to the gadgets above I also have and use quite often a kitchen aid stand mixer, a food processor, crock pot, and blender. We didn't do it all at once, but we started out with the ones we would use most and the ones that saved us the most time. They have all been wonderful investments and gifts to ourselves.











January 9, 2011

The 40 minute food dash

After returning from another out of town trip recently I was struck with just how far I had come from where we started this journey nearly 2 years ago. I have an out of town routine now that is like a well oiled machine. I no longer fear it and in fact it's something I have started to look forward to now because it means I get a chance to visit friends and other parents and isn't as taxing as it used to be. However, visiting with people always brings food and the questions about what Jackson is eating, what's that cute box and stuff and wow that's a lot of vitamins. I try not to be the crazy nutrition lady, I really do, but it's hard to go unnoticed when I have to nearly tackle my kid at a party because someone just handed him a biscuit to eat without checking with me first. True story. I know how I sound, and I try not to make the diet sound so hard but it's all just so foreign to people that it makes all this gluten free cooking sound so scary and time consuming. I see the looks in people's eyes when they ask me questions and I start talking...LOL...I see it I really do. All I have to say about this is that it's all not really that hard and it sounds much worse than it is. . Trust me we used to do a lot of pre-made foods for the kid and ourselves so this all was quite a switch for us too but we started small and worked our way up. When that new routine became our new norm and we felt comfortable then we tried something new. That brings us up to where we are today. If you had told me 2 years ago what I am capable of now I would not have been able to see myself doing it but I am, and you can too. If you plan and simplify things for yourself then you can make the most of your time and the diet will become your new norm too.

I have perfected a few simple dishes that Jackson loves and I make them often. It works out best for me to just make him a dish for dinner one night and serve it only to him and we eat leftovers. Then I bag everything up and put in in the freezer or fridge for a quick serve later. This is a good way to keep your freezer stocked with things you can just microwave later without the extra effort. If you are the type of person, like me, who has a hard time setting aside a big chunk of scheduled time once a week to cook. Then this is a good option for you. That is so not me but every once in a while I get motivated and do just that.

This past week I was going out of town so I decided to make some easy serve foods to take with us since my supply was low. I decided to cook a bunch at once. Now these are things I have made many times and it's not a race but I decided to time myself and see how long it took me to make the stuff I was planning to make. Turns out only 40 minutes, and I was taking the picture at 44 minutes. Check out what I made:

Almond milk, cinnamon spread (made from the pulp leftover while making the milk), Chocolate protein powder pancakes, sausage balls, rice penne pasta, spaghetti sauce (made with blended in fresh green beans..garlic hides so much). That's a hot breakfast for two weeks at least, and a bunch of other stuff for lunches and snack times too. All accomplished in 40 minutes.

The trick for me are the time savers that I have invested in. Such as an electric pancake griddle, blender, and portioners (mini ice cream scoops available at kitchen supply stores) of all different sizes. These little guys are major work horses in my kitchen and save me tons of time. I use them to make the sausage balls quickly and evenly. It only takes me like a couple minutes to ball up 2 pounds of sausage and toss it in the oven (350 f0r 30 minutes). The pancakes are all the same size because I use a ice cream scooper to portion them out and it makes it go faster as well. I try to modify recipes to save time just as I do when I substitute out the ingredients. This combined with time savers like a stand mixer and bread maker make going GFCFSF much easier.

So my point is just that if you are thinking about trying the GFCFSF diet for your kiddo just take it easy, don't let other parents' levels of involvement or boasting (or my blogging for that matter)intimidate you into thinking you could never do that or that you could never find the time. It looks a lot harder that it really is and it takes real courage to go down this road but you'll be happy you did. It's like a picnic once you get here.

I'll post the recipes for cinnamon spread and the pasta sauce to this blog too for any interested, both are a great way to get veggies into your kid.

November 27, 2010

Tis' the season for Chocolate



Hello everyone! I've been hard at work lately testing new recipes and finding new products. Now it's time to take a few minutes to update you all on my latest escapades. Chocolate treats! I was lucky enough to come across these Enjoy Life chocolate chips at Holiday market in Cottonwood last week. They are a complete hit with my son and gluten, casein, and soy free. They are made in dedicated facilities and I believe are nut free as well. The ingredients are : Evaporated Cane Juice, Chocolate Liquor, Non-Dairy Cocoa Butter. So far we used them plain by themselves in a cute bento shaker, made chocolate candy clusters, and my son enjoyed hot chocolate for the very first time! These have already earned a spot on my next shopping list and I believe I will just make sure to keep some around the pantry for last minute school functions. I'll post the recipes to make home made chocolate syrup and the chocolate clusters below here. If you want to visit the web site for these cute little chips you can just click on this post's title to be taken right there. Oh by the way the chips are mini size which my son loves. I find the mini size to be more versatile as well. Mini chocolate sprinkles anyone?

Chocolate Syrup
6 T Almond milk or other milk sub
6 oz. Enjoy Life Chocolate chips (If you can't weigh them just eyeball and add more chocolate or milk as needed)

Bring almond milk just to a boil and pour over chips in a separate bowl. Let sit for one minute then whisk until sauce is smooth. Add a pinch of salt to open up the flavor. Store in fridge for up to a week.






Chocolate Clusters

Please forgive me, this next one is not much of a recipe. It started as an experiment and I forgot to measure things for you all so bare with me. My measurements are approximate in this recipe so use your own judgement about how much fillings to add.

1 cup Enjoy life mini chocolate chips

1/2 cup dry roasted almonds chopped up a bit (we use Blue Diamond)

1/2 cup dried cranberries (we use Ocean Spray)

1/4 -1/2 cup Buckwheat flakes (we use Arrowhead Mills available at Holiday markets and Orchard)

Place chocolate chips in microwave proof bowl. Microwave for 30 seconds and stir then repeat until chocolate is melted stirring every 30 seconds so it does not burn. Then just mix in the fillings till well blended. You can switch up the mix ins to suit your own tastes. Scoop into bite sized mounds on parchment paper and place in the fridge to cool. After 30 minutes transfer these clusters to a storage container and store in the fridge. Enjoy!




Hot Chocolate

Really simple, just warm up any milk substitute and stir in some of your chocolate syrup. Also works cold for chocolate milk! I like to add a banana slice and bento pick to make a stir stick